Frankie has nystagmus along with albinism. His eyes wobble back and forth and it gets worse when he is tired. It has gotten better since he was a baby, though. Sometimes it is hard to tell where he is looking. I have ordered this book: All Children Have Different Eyes. It is about a boy with nystagmus. There is also a girl in it with crossed eyes, which my daughter, Lizzy, had and was corrected by surgery.
I sometimes worry about the nystagmus in regard to Frankie learning to read. His eyes will get so much more tired than other children. I worry that reading will not be enjoyable to him. I am thinking about teaching him braille, so he can always use that when he does get tired. I will talk it over with his TVI and make the best decision for him.
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