My Heart is Walking Around Outside My Body

"Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body." Elizabeth Stone I relate to this often! Having kids in so rewarding, but can be very challenging when your kids are hurting. Lizzy recently got fitted for a back brace for Scoliosis. We found out back in October that she had it, and she received the brace in the beginning of January. She has been doing remarkably well! I, on the other hand, have had a hard time. Just finding out in the beginning was difficult. Now that she has it, and I am the one who has to pull the 3 straps tighter around her as she says "Ow", I find it even harder and it makes me sad. She has started sleeping in it and is almost up to the 18 recommended hours a day. It will probably be a year to a year and a half that she has to wear it, but it is hard to see your child in discomfort. I know there are kids with so much worse things, but it still is hard for me. But I am proud of her for how brave she has been and how good she has been about wearing it!

Hot Chocolate

Frankie had a session with his O&M teacher today. Cold as it was, they bundled up and walked from Starbuck's, crossed at the crosswalk, (using his cane) and walked to Dunkin' Donuts. They came back to meet Lizzy and I at Starbuck's to order hot chocolate. Frankie used his monocular to look at the menu boards; first finding "tea" and then "hot chocolate". I was struck by a few things. First, he was able to read the words on the menu, yea!! Second, he needs the monocular to see the menu. I just had never thought about him going into Starbuck's when he is older and having trouble seeing the menu. Of course, it should be obvious to me, but I just never thought about it. Sometimes there is just so much to think about it is overwhelming! He did enjoy his hot chocolate as he gulped it down.