We had our annual bowl-a-thon yesterday to benefit NOAH and people with albinism, like Frankie! We had 45 people come to Ryan Family Amusements in Millis, MA! Five people total; 4 children including Frankie and 1 adult with albinism came.
Everyone had a fun time bowling, playing arcade games and eating pizza and cookies! As always, it is always nice to talk with others who have albinism or have children with albinism. The camaraderie of friends and family bowling together for a common cause is a great feeling!
Monday, February 28, 2011
Friday, February 25, 2011
School Vacation week events!
So I am still sad and not feeling great, trying to see many doctors in the next few weeks; but the kids were off from school and I wanted to have fun with them and make sure they had an enjoyable week!
The weekend started out with Coco Key Water Resort in Danvers. The kids loved the lazy river, waterslides, and pools!! We stayed over and got to swim and play for 2 days!
On Monday we went snow shoeing at Gore Place in Waltham! We had never tried it before and it was so much fun! Lizzy and Frankie both enjoyed it, we walked for about 45 minutes and then came in for hot cocoa!
Sky Zone! trampoline park in Hyde Park was also quite fun for the kids! They jumped for 1/2 hour in the hugs trampoline and they could even jump off the wall!
We love skating at Larz Anderson park in Brookline, and again did it this week! We love skating outside!
Then we had our annual bowl-a-thon, post to follow later!
The weekend started out with Coco Key Water Resort in Danvers. The kids loved the lazy river, waterslides, and pools!! We stayed over and got to swim and play for 2 days!
On Monday we went snow shoeing at Gore Place in Waltham! We had never tried it before and it was so much fun! Lizzy and Frankie both enjoyed it, we walked for about 45 minutes and then came in for hot cocoa!
Sky Zone! trampoline park in Hyde Park was also quite fun for the kids! They jumped for 1/2 hour in the hugs trampoline and they could even jump off the wall!
We love skating at Larz Anderson park in Brookline, and again did it this week! We love skating outside!
Then we had our annual bowl-a-thon, post to follow later!
Sunday, February 20, 2011
Sad
I got to go down to NJ with John for Pa's wake and funeral. It was comforting to see the family, especially my mom.
Pa was in the air force, so he had a military funeral and 2 air force men were there and folded the flag and presented it to my mom. One then played Taps. It was very moving.
I am feeling especially sad that Grandma and Pa are now both gone. I know they are in a better place and I will see them again some day. But it is still very sad. Just so many family members dying not so far apart is taking it's toll. Coupled with my health issues, it has been a lot. The kids are off of school this week, so I want to make it a fun week for them, so I will try my best. But I really just feel sad.
Pa was in the air force, so he had a military funeral and 2 air force men were there and folded the flag and presented it to my mom. One then played Taps. It was very moving.
I am feeling especially sad that Grandma and Pa are now both gone. I know they are in a better place and I will see them again some day. But it is still very sad. Just so many family members dying not so far apart is taking it's toll. Coupled with my health issues, it has been a lot. The kids are off of school this week, so I want to make it a fun week for them, so I will try my best. But I really just feel sad.
Monday, February 14, 2011
Miss you, Pa!
My grandpa died on Sunday morning, at his house, in his own bed. He had been in hospice, but he had just came home on Wednesday, and was so happy to be home. I am glad he got to be at home and now is "home" with Grandma. I miss them both so much.
Pa was always dressing up in funny get-ups to make us all laugh. I remember him dressing up in bicycle shorts, and us all laughing at his skinny legs. : ) Or himdoing funny dances with us, playing his harmonica. He also was a great violin player and I loved to hear him play that. We are going to use Lizzy toy violin in his casket, she was happy to give it.
I feel blessed that I had so many years to spend with Pa and Grandma; and they were such a big part of my life and got to know my kids! I will miss them always, I do have so many happy memories!
Pa was always dressing up in funny get-ups to make us all laugh. I remember him dressing up in bicycle shorts, and us all laughing at his skinny legs. : ) Or himdoing funny dances with us, playing his harmonica. He also was a great violin player and I loved to hear him play that. We are going to use Lizzy toy violin in his casket, she was happy to give it.
I feel blessed that I had so many years to spend with Pa and Grandma; and they were such a big part of my life and got to know my kids! I will miss them always, I do have so many happy memories!
Thursday, February 10, 2011
Thankful Thursday!
I bought a journal today to write my thankful thoughts each day. I will share once in a while. : )
Colette coming to play with Frankie!
Lizzy really enjoying her skating!
Talking with Mom. : )
Warm peaches with cinnamon.
Getting special Valentine's gifts for the kids, God-daughters, neices and nephews.
Colette coming to play with Frankie!
Lizzy really enjoying her skating!
Talking with Mom. : )
Warm peaches with cinnamon.
Getting special Valentine's gifts for the kids, God-daughters, neices and nephews.
Friday, February 4, 2011
Transition to Kindergarten!!
We had Frankie's annual EIP meeting last week, and the transition to kindergarten part, as well! First, I have to say I cannot believe he will be starting kindergarten in the fall!! How fast time goes and I feel sad that my "baby" will be in school all day, and riding the bus. : )
The meeting went quite well! He will continue with his TVI services and O&M. He will be using his cane more, to and from the bus, which makes me a little sad. He will also get a special ed. teacher in his classroom a few times a week to help him in the class, which I was happy about.
There will also be services in place to keep him safe. He will have someone helping on and off the bus, navigating the halls, lunch and recess.
So it feels good to have the services in place, but bittersweet that he needs them at all!
The meeting went quite well! He will continue with his TVI services and O&M. He will be using his cane more, to and from the bus, which makes me a little sad. He will also get a special ed. teacher in his classroom a few times a week to help him in the class, which I was happy about.
There will also be services in place to keep him safe. He will have someone helping on and off the bus, navigating the halls, lunch and recess.
So it feels good to have the services in place, but bittersweet that he needs them at all!
Thursday, February 3, 2011
Thankful Thursday!
Dinner at Vellos with the kids and friends!
Getting Frankie's IEP finalized and questions answered.
Frankie playing and having fun with his friends. : )
My warm house.
Getting Frankie's IEP finalized and questions answered.
Frankie playing and having fun with his friends. : )
My warm house.
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