We went to a high school basketball game this afternoon, that my brother-in-law coaches. Lizzy had a great time and loved watching and cheering, especially since she has started playing basketball this year.
Frankie, on the other hand was more interested in eating. About half way through, he said "I don't really like it because I can't see the Patriots". He watches the Patriots on TV with Daddy, and thinks every sport is them. It was a little funny, in this respect, yet I felt so sad that he truly could not see the players or game. Makes you realize his visual limitations. Just feeling a little sad tonight. But I'm sure he'll have me smiling again in the morning!
Thursday, January 14, 2010
Wednesday, January 6, 2010
Let's Motor
Frankie had his first class at Let's Motor yesterday, he loved it! He had a one on one class with the owner which started with stretching and yoga. He and Lizzy make up yoga moves, so he loved this. He then got to do an obstacle course and some tumbling, jumping and climbing. In the beginning he painted a fish for the new mural and the session ended with a lollipop!
Let's Motor specializes in kids' with special needs, and the director has had other kids with albinism. It was very nice to have some work with Frankie who really gets him. We are excited for next week!
http://www.letsmotorskills.com
Let's Motor specializes in kids' with special needs, and the director has had other kids with albinism. It was very nice to have some work with Frankie who really gets him. We are excited for next week!
http://www.letsmotorskills.com
Tuesday, January 5, 2010
Happy 2010!!
Wow, it has been SO long!! 2009 was a HARD year, so I am looking forward to 2010 being better! With Frankie's surgery last year, his recovery, IEP stuff, Aunt Fran's brain tumor, and the passing of Grandma, is was a sad year. I pretty much forgot about blogging. But I am going to try very hard to get back into it this year!
Frankie loves his preschool! He is in the same school he started at the end of last year, with the same teachers! They are talking about pets now. They were supposed to bring in a stuffed pet to play in the classroom with; dog, cat, etc. Since he likes Curious George so much, mostly all of his animals are monkeys! : ) So he wound up bringing in a meerkat!
Lizzy loves school too! She is in second grade and skates, does ballet, plays the violin and basketball!
Frankie loves his preschool! He is in the same school he started at the end of last year, with the same teachers! They are talking about pets now. They were supposed to bring in a stuffed pet to play in the classroom with; dog, cat, etc. Since he likes Curious George so much, mostly all of his animals are monkeys! : ) So he wound up bringing in a meerkat!
Lizzy loves school too! She is in second grade and skates, does ballet, plays the violin and basketball!
Friday, October 2, 2009
Albinism on 20/20
Please watch in support of Frankie!!
20/20 Special: Overcoming Social Stigma of Albinism, Friday, October 2nd at 10pm
Visit http://abcnews.go.com/2020 for the latest information.
20/20 Special: Overcoming Social Stigma of Albinism, Friday, October 2nd at 10pm
Visit http://abcnews.go.com/2020 for the latest information.
Monday, May 11, 2009
Frankie goes to School!
Frankis is in his second week of preschool already!! He loves it and asks every day if he is going today. On his first day, he said he wanted to go back as soon as it was done. I am so glad he likes it!
I met his new TVI last week too, she seems very nice and was there again today.
We got to visit the classroom twice before he started, once with just his teacher and O and M specialist. He went another day when the kids where there for a hour, so that was great to get adjusted. John and I both stayed on his first day for about 1/2 hour.
This week they are talking about bugs. He came home with a bug stamped picture, talking about lady bugs! So it has been a great experience for him so far, and he talks about the other kids too.
Today the sun awning was also up over some of the equipment, so that will help him with the sun.
I am so glad he likes it so much!!
I met his new TVI last week too, she seems very nice and was there again today.
We got to visit the classroom twice before he started, once with just his teacher and O and M specialist. He went another day when the kids where there for a hour, so that was great to get adjusted. John and I both stayed on his first day for about 1/2 hour.
This week they are talking about bugs. He came home with a bug stamped picture, talking about lady bugs! So it has been a great experience for him so far, and he talks about the other kids too.
Today the sun awning was also up over some of the equipment, so that will help him with the sun.
I am so glad he likes it so much!!
Sunday, May 10, 2009
Grandma, I Miss You
I was able to make it down to the wake and funeral for my Grandma. It was comforting to be with family and see so many relatives and friends who came. Of course it was comforting to be with my mom.
My grandma still looked so beautiful, she was wearing the pink dress she wore to my wedding, surrounded by pink flowers. The service for her was so beautiful too. My mom and I each did a Bible reading. A lady my mom knows sang, "It is Well with My Soul" and "I Can Only Imagine". I spoke a few words about my grandma too, just spur of the moment. I talked about how she was a rare person who was always kind and gentle. She was always having fun with us; camp outs, parties, etc. We were always laughing. My mom gave a wonderful tribute, a letter to her mom. She had read it to Grandma a few years ago and Grandma had said it was the nicest thing anyone had even said about her. The service closed with some kind words by the pastor.
I just wanted to write down a few of these memories so I can keep them close. It was cold and rainy at the cemetery, but as soon as the pastor started to speak, the church bells rang out! We then went out to eat and reminisced about stories of Grandma and Pa, pretty much all funny!
I really miss her a lot. I feel sad almost every night and cry. She was a wonderful person!
My grandma still looked so beautiful, she was wearing the pink dress she wore to my wedding, surrounded by pink flowers. The service for her was so beautiful too. My mom and I each did a Bible reading. A lady my mom knows sang, "It is Well with My Soul" and "I Can Only Imagine". I spoke a few words about my grandma too, just spur of the moment. I talked about how she was a rare person who was always kind and gentle. She was always having fun with us; camp outs, parties, etc. We were always laughing. My mom gave a wonderful tribute, a letter to her mom. She had read it to Grandma a few years ago and Grandma had said it was the nicest thing anyone had even said about her. The service closed with some kind words by the pastor.
I just wanted to write down a few of these memories so I can keep them close. It was cold and rainy at the cemetery, but as soon as the pastor started to speak, the church bells rang out! We then went out to eat and reminisced about stories of Grandma and Pa, pretty much all funny!
I really miss her a lot. I feel sad almost every night and cry. She was a wonderful person!
Happy 3rd Birthday, Frankie!! May 4, 2009
Frankie is 3!! He turned 3 on Monday, so the 4 of us celebrated Sunday night before I left for NJ. Yesterday we had his party with family and friends in our backyard. The rain held off and everyone had fun! We played stick the hubcap on Lightning McQueen, a cars scavenger hunt, had pizza snacks and cake! Frankie's EI teachers were even able to come!! Yeah!
So my big boy is 3!!!
So my big boy is 3!!!
Sunday, May 3, 2009
Grandma
My Grandma passed away today, my mom's mom. It is such a shock, she was sitting on the bed talking to Pa and she fell off the bed and died. She had a massive heart attack.
I was very close to her and Pa. We were always at their house and have such fun memories. Every year on labor day weekend we would camp out in their backyard, have a BBQ, lots of candy and snacks, games, cards, and fun! The first year they both dressed up as ghosts to scare us. I was really scared at first, but then did realize it was them.
We were always doing something funny together too. When she got her video camera, we would make up plays, sing funny songs and have lawn chair precision team skits. She always had fun toys and candy and goodies. She would say, "Save room for dessert!" She stills has fun buying things for her 4 great grand children.
We got to see her and go out to lunch 2 weeks ago. I am so glad. She gave Frankie his birthday gifts and a coloring book and crayons for Lizzy. I am glad Lizzy is old enough to remember her.
I miss you already, Grandma. I love you so much!
I was very close to her and Pa. We were always at their house and have such fun memories. Every year on labor day weekend we would camp out in their backyard, have a BBQ, lots of candy and snacks, games, cards, and fun! The first year they both dressed up as ghosts to scare us. I was really scared at first, but then did realize it was them.
We were always doing something funny together too. When she got her video camera, we would make up plays, sing funny songs and have lawn chair precision team skits. She always had fun toys and candy and goodies. She would say, "Save room for dessert!" She stills has fun buying things for her 4 great grand children.
We got to see her and go out to lunch 2 weeks ago. I am so glad. She gave Frankie his birthday gifts and a coloring book and crayons for Lizzy. I am glad Lizzy is old enough to remember her.
I miss you already, Grandma. I love you so much!
Saturday, May 2, 2009
Life
Wow, it's been along time since I have posted, so much going on!! I have a lot of updates on TVI's, school, etc, I will write about soon.
Lizzy, Frankie and I headed down to NJ to visit my parents over spring break a few weeks ago. We got some bad news, my aunt was diagnosed with a stage 4 cancerous brain tumor. I have really been in shock the past 2 weeks and cannot even believe it. She was fine one day, and this news the next. It saddens me that she has this and it is so progressed. It is also sad for my family, she is my dad's younger sister. She will start chemo and radiation next week, we keep praying for her!
While she was having a biopsy last week, she said she could feel her dad (my grandpa) watching over her. He died year ago Valentine's Day.
That reminded me of what happened just before Frankie's surgery, and I have thought of ever since and wanted to share. Of course before his surgery, i I was quite nervous and upset. I went to mass by myself the Sunday before. I felt kind of a mess, and then 2 people sat down behind me and I smelled cologne and I immediately thought of him, it was the cologne he wore, and I was transported in my mind to their old house, in my dad's old room. It was a small room, just like Frankie's room. Then I was in my grandparents bedroom, and I knew that my grandpa was looking out for Frankie!
It helped me get through the next few weeks of the surgery and recovery.
I am praying every day for my aunt and trying to make the most of each day that I spend with my family. Life it good, but is is also short and sometimes difficult. Happy times should be cherished. You really never know what the future holds. So I am going to try every day to think of things that happened that made me smile, happy and write them down.
Frankie was sick today, but I can still think of a few:
Lizzy got to go to her little league parade, softball game and friend's house
Frankie had a yummy popsicle and jello
We all watched part of the Sound of Music together
It was a nice day and I got to take a walk.
Lizzy, Frankie and I headed down to NJ to visit my parents over spring break a few weeks ago. We got some bad news, my aunt was diagnosed with a stage 4 cancerous brain tumor. I have really been in shock the past 2 weeks and cannot even believe it. She was fine one day, and this news the next. It saddens me that she has this and it is so progressed. It is also sad for my family, she is my dad's younger sister. She will start chemo and radiation next week, we keep praying for her!
While she was having a biopsy last week, she said she could feel her dad (my grandpa) watching over her. He died year ago Valentine's Day.
That reminded me of what happened just before Frankie's surgery, and I have thought of ever since and wanted to share. Of course before his surgery, i I was quite nervous and upset. I went to mass by myself the Sunday before. I felt kind of a mess, and then 2 people sat down behind me and I smelled cologne and I immediately thought of him, it was the cologne he wore, and I was transported in my mind to their old house, in my dad's old room. It was a small room, just like Frankie's room. Then I was in my grandparents bedroom, and I knew that my grandpa was looking out for Frankie!
It helped me get through the next few weeks of the surgery and recovery.
I am praying every day for my aunt and trying to make the most of each day that I spend with my family. Life it good, but is is also short and sometimes difficult. Happy times should be cherished. You really never know what the future holds. So I am going to try every day to think of things that happened that made me smile, happy and write them down.
Frankie was sick today, but I can still think of a few:
Lizzy got to go to her little league parade, softball game and friend's house
Frankie had a yummy popsicle and jello
We all watched part of the Sound of Music together
It was a nice day and I got to take a walk.
Sunday, April 12, 2009
Happy Easter!!
We had a fun weekend! Yesterday we went to the Stone Zoo for the Bunny Bonanza! The kids got their pic with the bunny, planted seeds, did crafts and played games! We got to see some animals too, including the new back bears. It was cold, though, so we had lunch in the car!
This morning we started with an early morning egg hunt and opening Easter baskets, then went to church. Then the family came over for brunch and more egg hunting! Playground later in the day!
This morning we started with an early morning egg hunt and opening Easter baskets, then went to church. Then the family came over for brunch and more egg hunting! Playground later in the day!
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