Please watch in support of Frankie!!
20/20 Special: Overcoming Social Stigma of Albinism, Friday, October 2nd at 10pm
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Friday, October 2, 2009
Monday, May 11, 2009
Frankie goes to School!
Frankis is in his second week of preschool already!! He loves it and asks every day if he is going today. On his first day, he said he wanted to go back as soon as it was done. I am so glad he likes it!
I met his new TVI last week too, she seems very nice and was there again today.
We got to visit the classroom twice before he started, once with just his teacher and O and M specialist. He went another day when the kids where there for a hour, so that was great to get adjusted. John and I both stayed on his first day for about 1/2 hour.
This week they are talking about bugs. He came home with a bug stamped picture, talking about lady bugs! So it has been a great experience for him so far, and he talks about the other kids too.
Today the sun awning was also up over some of the equipment, so that will help him with the sun.
I am so glad he likes it so much!!
I met his new TVI last week too, she seems very nice and was there again today.
We got to visit the classroom twice before he started, once with just his teacher and O and M specialist. He went another day when the kids where there for a hour, so that was great to get adjusted. John and I both stayed on his first day for about 1/2 hour.
This week they are talking about bugs. He came home with a bug stamped picture, talking about lady bugs! So it has been a great experience for him so far, and he talks about the other kids too.
Today the sun awning was also up over some of the equipment, so that will help him with the sun.
I am so glad he likes it so much!!
Sunday, May 10, 2009
Grandma, I Miss You
I was able to make it down to the wake and funeral for my Grandma. It was comforting to be with family and see so many relatives and friends who came. Of course it was comforting to be with my mom.
My grandma still looked so beautiful, she was wearing the pink dress she wore to my wedding, surrounded by pink flowers. The service for her was so beautiful too. My mom and I each did a Bible reading. A lady my mom knows sang, "It is Well with My Soul" and "I Can Only Imagine". I spoke a few words about my grandma too, just spur of the moment. I talked about how she was a rare person who was always kind and gentle. She was always having fun with us; camp outs, parties, etc. We were always laughing. My mom gave a wonderful tribute, a letter to her mom. She had read it to Grandma a few years ago and Grandma had said it was the nicest thing anyone had even said about her. The service closed with some kind words by the pastor.
I just wanted to write down a few of these memories so I can keep them close. It was cold and rainy at the cemetery, but as soon as the pastor started to speak, the church bells rang out! We then went out to eat and reminisced about stories of Grandma and Pa, pretty much all funny!
I really miss her a lot. I feel sad almost every night and cry. She was a wonderful person!
My grandma still looked so beautiful, she was wearing the pink dress she wore to my wedding, surrounded by pink flowers. The service for her was so beautiful too. My mom and I each did a Bible reading. A lady my mom knows sang, "It is Well with My Soul" and "I Can Only Imagine". I spoke a few words about my grandma too, just spur of the moment. I talked about how she was a rare person who was always kind and gentle. She was always having fun with us; camp outs, parties, etc. We were always laughing. My mom gave a wonderful tribute, a letter to her mom. She had read it to Grandma a few years ago and Grandma had said it was the nicest thing anyone had even said about her. The service closed with some kind words by the pastor.
I just wanted to write down a few of these memories so I can keep them close. It was cold and rainy at the cemetery, but as soon as the pastor started to speak, the church bells rang out! We then went out to eat and reminisced about stories of Grandma and Pa, pretty much all funny!
I really miss her a lot. I feel sad almost every night and cry. She was a wonderful person!
Happy 3rd Birthday, Frankie!! May 4, 2009
Frankie is 3!! He turned 3 on Monday, so the 4 of us celebrated Sunday night before I left for NJ. Yesterday we had his party with family and friends in our backyard. The rain held off and everyone had fun! We played stick the hubcap on Lightning McQueen, a cars scavenger hunt, had pizza snacks and cake! Frankie's EI teachers were even able to come!! Yeah!
So my big boy is 3!!!
So my big boy is 3!!!
Sunday, May 3, 2009
Grandma
My Grandma passed away today, my mom's mom. It is such a shock, she was sitting on the bed talking to Pa and she fell off the bed and died. She had a massive heart attack.
I was very close to her and Pa. We were always at their house and have such fun memories. Every year on labor day weekend we would camp out in their backyard, have a BBQ, lots of candy and snacks, games, cards, and fun! The first year they both dressed up as ghosts to scare us. I was really scared at first, but then did realize it was them.
We were always doing something funny together too. When she got her video camera, we would make up plays, sing funny songs and have lawn chair precision team skits. She always had fun toys and candy and goodies. She would say, "Save room for dessert!" She stills has fun buying things for her 4 great grand children.
We got to see her and go out to lunch 2 weeks ago. I am so glad. She gave Frankie his birthday gifts and a coloring book and crayons for Lizzy. I am glad Lizzy is old enough to remember her.
I miss you already, Grandma. I love you so much!
I was very close to her and Pa. We were always at their house and have such fun memories. Every year on labor day weekend we would camp out in their backyard, have a BBQ, lots of candy and snacks, games, cards, and fun! The first year they both dressed up as ghosts to scare us. I was really scared at first, but then did realize it was them.
We were always doing something funny together too. When she got her video camera, we would make up plays, sing funny songs and have lawn chair precision team skits. She always had fun toys and candy and goodies. She would say, "Save room for dessert!" She stills has fun buying things for her 4 great grand children.
We got to see her and go out to lunch 2 weeks ago. I am so glad. She gave Frankie his birthday gifts and a coloring book and crayons for Lizzy. I am glad Lizzy is old enough to remember her.
I miss you already, Grandma. I love you so much!
Saturday, May 2, 2009
Life
Wow, it's been along time since I have posted, so much going on!! I have a lot of updates on TVI's, school, etc, I will write about soon.
Lizzy, Frankie and I headed down to NJ to visit my parents over spring break a few weeks ago. We got some bad news, my aunt was diagnosed with a stage 4 cancerous brain tumor. I have really been in shock the past 2 weeks and cannot even believe it. She was fine one day, and this news the next. It saddens me that she has this and it is so progressed. It is also sad for my family, she is my dad's younger sister. She will start chemo and radiation next week, we keep praying for her!
While she was having a biopsy last week, she said she could feel her dad (my grandpa) watching over her. He died year ago Valentine's Day.
That reminded me of what happened just before Frankie's surgery, and I have thought of ever since and wanted to share. Of course before his surgery, i I was quite nervous and upset. I went to mass by myself the Sunday before. I felt kind of a mess, and then 2 people sat down behind me and I smelled cologne and I immediately thought of him, it was the cologne he wore, and I was transported in my mind to their old house, in my dad's old room. It was a small room, just like Frankie's room. Then I was in my grandparents bedroom, and I knew that my grandpa was looking out for Frankie!
It helped me get through the next few weeks of the surgery and recovery.
I am praying every day for my aunt and trying to make the most of each day that I spend with my family. Life it good, but is is also short and sometimes difficult. Happy times should be cherished. You really never know what the future holds. So I am going to try every day to think of things that happened that made me smile, happy and write them down.
Frankie was sick today, but I can still think of a few:
Lizzy got to go to her little league parade, softball game and friend's house
Frankie had a yummy popsicle and jello
We all watched part of the Sound of Music together
It was a nice day and I got to take a walk.
Lizzy, Frankie and I headed down to NJ to visit my parents over spring break a few weeks ago. We got some bad news, my aunt was diagnosed with a stage 4 cancerous brain tumor. I have really been in shock the past 2 weeks and cannot even believe it. She was fine one day, and this news the next. It saddens me that she has this and it is so progressed. It is also sad for my family, she is my dad's younger sister. She will start chemo and radiation next week, we keep praying for her!
While she was having a biopsy last week, she said she could feel her dad (my grandpa) watching over her. He died year ago Valentine's Day.
That reminded me of what happened just before Frankie's surgery, and I have thought of ever since and wanted to share. Of course before his surgery, i I was quite nervous and upset. I went to mass by myself the Sunday before. I felt kind of a mess, and then 2 people sat down behind me and I smelled cologne and I immediately thought of him, it was the cologne he wore, and I was transported in my mind to their old house, in my dad's old room. It was a small room, just like Frankie's room. Then I was in my grandparents bedroom, and I knew that my grandpa was looking out for Frankie!
It helped me get through the next few weeks of the surgery and recovery.
I am praying every day for my aunt and trying to make the most of each day that I spend with my family. Life it good, but is is also short and sometimes difficult. Happy times should be cherished. You really never know what the future holds. So I am going to try every day to think of things that happened that made me smile, happy and write them down.
Frankie was sick today, but I can still think of a few:
Lizzy got to go to her little league parade, softball game and friend's house
Frankie had a yummy popsicle and jello
We all watched part of the Sound of Music together
It was a nice day and I got to take a walk.
Sunday, April 12, 2009
Happy Easter!!
We had a fun weekend! Yesterday we went to the Stone Zoo for the Bunny Bonanza! The kids got their pic with the bunny, planted seeds, did crafts and played games! We got to see some animals too, including the new back bears. It was cold, though, so we had lunch in the car!
This morning we started with an early morning egg hunt and opening Easter baskets, then went to church. Then the family came over for brunch and more egg hunting! Playground later in the day!
This morning we started with an early morning egg hunt and opening Easter baskets, then went to church. Then the family came over for brunch and more egg hunting! Playground later in the day!
Wednesday, April 8, 2009
Circus of the Senses
Frankie and I went to the Big Apple Circus, "Circus of the Senses" today, in Boston! We went with friends, the little girl has albinism, and met another family with a girl with albinism too!
The show itself was great, we were in the 2nd row, but I still don't think Frankie could see too well, he was more interested in climbing in and out of his chair! : ) There were clown acts, great trapeze and balance acts, dancing, dogs, etc!
Afterwards, we got to go up in the ring for the touch session! That was so great!
Frankie got to touch the dog and pony, swing on a rope trapeze, touch the
costumes, use the juggling pins, talk to the clowns! It was so much fun to meet the performers and see everything up close! He actually could see the people and animals and had fun talking to them!
We can't wait to go again next year!!
The show itself was great, we were in the 2nd row, but I still don't think Frankie could see too well, he was more interested in climbing in and out of his chair! : ) There were clown acts, great trapeze and balance acts, dancing, dogs, etc!
Afterwards, we got to go up in the ring for the touch session! That was so great!
Frankie got to touch the dog and pony, swing on a rope trapeze, touch the
costumes, use the juggling pins, talk to the clowns! It was so much fun to meet the performers and see everything up close! He actually could see the people and animals and had fun talking to them!
We can't wait to go again next year!!
Wednesday, March 25, 2009
IEP Meeting!!!!!
Yea, Frankie got into the integrated preschool in our town and we are happy with his IEP!! I am very excited and relieved.
He will receive an hour a week of vision services and 45 minutes a week of O and M. The specialists will also have time to consult with the teachers. His teacher seems so nice. We are going to go into the school in a few weeks with the O and M specialist, so he can get used to things.
We finally got the vision report late last night, so I think the director at the preschool is going to look into getting a new person. It doesn't seem like she can take this on, at this time.
Frankie will start school right on his birthday, May 4th. He will be in the afternoons for the remainder of the school year. A little tricky with naps, but we shall see. We will start with 4 afternoons, and can always go down to 2. Over the summer we decided not to do the summer program, so he will receive his services at our house. In the fall he will be going 4 mornings, which will be great!
I am very happy with how things turned out and feel like another weight has been lifted!
He will receive an hour a week of vision services and 45 minutes a week of O and M. The specialists will also have time to consult with the teachers. His teacher seems so nice. We are going to go into the school in a few weeks with the O and M specialist, so he can get used to things.
We finally got the vision report late last night, so I think the director at the preschool is going to look into getting a new person. It doesn't seem like she can take this on, at this time.
Frankie will start school right on his birthday, May 4th. He will be in the afternoons for the remainder of the school year. A little tricky with naps, but we shall see. We will start with 4 afternoons, and can always go down to 2. Over the summer we decided not to do the summer program, so he will receive his services at our house. In the fall he will be going 4 mornings, which will be great!
I am very happy with how things turned out and feel like another weight has been lifted!
Tuesday, March 24, 2009
Doing Better!!!
Frankie is doing much better from his surgery!! It took him, and me, about 2 weeks to feel back to normal. He is playing all the time now, happy and going outside. The sun is not bothering him with his sunglasses on! It is nice to have our Frankie back!! And we are done with the eye drops! : )
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